Kidney Transplant Conversations features diverse voices and experiences of donating, receiving, and caring for this gift of life. Over the coming months each new episode will feature interviews with patients, caregivers, advocates, donors, healthcare providers, and community leaders. At its highest level, our podcast series focuses on quality healthcare delivery, highlighting the innovative approaches kidney transplant recipients and providers are applying to improve care. Along the way, we’ll explore all the stages of the kidney transplant journey and invite our guests to share their experiences and insights. We’ll also look at things like health disparities in renal transplant, identifying where and why some groups don’t do as well when compared to others, and discuss what we can do to close the gap. This will include explorations of inclusion, diversity, equity and access (also known by the acronym IDEA), which are all subjects central to the purpose of this podcast. We invite you to subscribe and let Kidney Transplant Conversations keep you connected, informed and inspired with a constant flow of new thoughts and ideas. Send suggestions for guests and topics to: rolf.taylor@projectadvocacy.com
Episodes
Wednesday Sep 08, 2021
Wednesday Sep 08, 2021
How the UNC Chapel Hill Latino Transplant Clinic is increasing access through culturally competent care. UNC Chapel Hill Latino Transplant Clinic, Part 2
Featuring Transplant Social Worker Daniela Matz and clinic founder Dr. Pablo Serrano.
In our last episode we met José and Xiomara Flores and heard about their five-year journey from kidney disease diagnosis to their live donor transplant, which took place at the University of North Carolina Transplant Latino Transplant Clinic. The clinic is the culmination of a very intentional vision, a strategic decision to integrate a Latino-focused Transplant Clinic within the Abdominal Transplant Division at UNC Chapel Hill. Since being established in 2018, they have gone on to demonstrate how workforce diversity and cultural competency go hand in hand in the delivery of quality care.
In today’s episode, transplant social worker Daniela Matz and clinic founder Dr. Pablo Serrano look back on Jose and Xiomara’s story, share with us insights into how the clinic works, and how they have been able to reduce renal transplant disparities.
All views and opinions expressed in this podcast reflect those of the participants.
We thank the participants and advisors who helped create this podcast, and our underwriter, Veloxis Pharmaceuticals.
© Project Advocacy, 2021
Resources relevant to Episodes 2 & 3 of Kidney Transplant Conversations:
Welcome to Infórmate
El objetivo de ésta página bilingüe es educar a los hispanos / latinos acerca de la donación de riñón en vida.
The goal of this bilingual page is to educate Hispanics / Latinos about living kidney donation.
National Kidney Foundation:
La información más importante sobre la enfermedad renal.
Provides lots of great information about kidney disease from prevention to transplant, including living donation.
https://www.kidney.org/espanol
American Kidney Fund
Nuestra misión es ayudar a las personas a combatir la enfermedad de los riñones y vivir una vida más sana.
Information plus financial assistance opportunities.
https://www.kidneyfund.org/en-espanol/
National Foundation for Transplants
Cómo eliminar las barreras financieras para los donantes vivos.
Removing financial barriers to transplantation.
https://transplants.org/resources/
Children’s Organ Transplant Association:
Recaudación de fondos y apoyo para niños y adultos jóvenes con poliquistosis renal.
Fundraising and support for children and young adults with polycystic kidney disease.
Monday Aug 23, 2021
Monday Aug 23, 2021
In this episode we’ll hear from José a patient, and Xiomara, his wife and donor, as they describe the challenges they experienced in their quest for a kidney transplant, and the joy they have felt since then. We’ll also hear from transplant social worker Daniela Matz, who assisted them.
The Census Bureau estimates that there are over 60 million Hispanics and Latinos living in the United States, and the Latinx population is the fastest growing minority. As many as 40 million are speaking Spanish as their first language. Although Hispanics and Latinos are more likely to experience kidney failure compared to other Americans, they are less likely to access kidney transplant as a solution, the resulting disparity means more years on dialysis, reduced quality of life, reduced life expectancy, and increased healthcare expenses.
Part of the problem is the waitlist for a transplant, there simply aren’t enough organs to go around. If a living donor can be found, then that is a gamechanger. But here we find another disparity – because the process of live donor kidney transplantation can often elude our minority populations.
To address some of these issues, in 2018 Dr. Pablo Serrano established the Latino Transplant Clinic at the University of North Carolina (UNC) Division of Abdominal Transplantation, in Chapel Hill, NC, with the aim of providing culturally competent and culturally sensitive care.
August is National Minority Donor Awareness Month (NMDAM).
Founded in 1996 by the National Minority Organ Tissue Transplant Education Program (MOTTEP) to bring heightened awareness to donation and transplantation in multicultural communities. For more information and shareable resources please visit:
https://www.donatelife.net/nmdam/
All views and opinions expressed in this podcast reflect those of the participants.
We thank the participants and advisors who helped create this podcast, and our underwriter, Veloxis Pharmaceuticals.
© Project Advocacy, 2021
Resources relevant to Episodes 2 of Kidney Transplant Conversations
Welcome to Infórmate
El objetivo de ésta página bilingüe es educar a los hispanos / latinos acerca de la donación de riñón en vida.
The goal of this bilingual page is to educate Hispanics / Latinos about living kidney donation.
http://informate.org/
National Kidney Foundation:
La información más importante sobre la enfermedad renal.
Provides lots of great information about kidney disease from prevention to transplant, including living donation.
https://www.kidney.org/espanol
American Kidney Fund
Nuestra misión es ayudar a las personas a combatir la enfermedad de los riñones y vivir una vida más sana.
Information plus financial assistance opportunities.
https://www.kidneyfund.org/en-espanol/
National Foundation for Transplants
Cómo eliminar las barreras financieras para los donantes vivos.
Removing financial barriers to transplantation.
https://transplants.org/resources/
Children’s Organ Transplant Association:
Recaudación de fondos y apoyo para niños y adultos jóvenes con poliquistosis renal.
Fundraising and support for children and young adults with polycystic kidney disease.
www.cota.org
Thursday Jun 10, 2021
Thursday Jun 10, 2021
Episode 1: Impact of Pandemic, & Meeting People Where They Are
Welcome to Kidney Transplant Conversations. The COVID-19 pandemic has everyone asking a lot of questions, especially transplant recipients, and those waiting for a transplant. In this episode we discuss the impact of the pandemic, talk about masks and vaccines, and how the pandemic is impacting people with immunosuppression. To explore these subjects, we welcome two guests to the podcast. Firstly, living donor recipient Risa Simon, who will share insights from the transplant patient’s point of view, and then Daryle Blackstock, PA-C, who will talk about the importance of meeting people where they are.
All views and opinions expressed in this podcast reflect those of the participants.
We thank the participants and advisors who helped create this podcast, and our underwriter, Veloxis Pharmaceuticals.
© Project Advocacy, 2021
Links to resources mentioned in this episode:
Kinsey's Kidney Adventure by Nadine Morsi
Medical Apartheid by Harriet Washington